To doctor.

One cardiovascular surgeon said. "No doctor wants to do this surgery very difficult, but if you don't have this surgery, your son will die. And you can't do it without a left thoracotomy. A surgeon really doesn't want to do it, but it can't be helped. There isn't. " The cardiovascular surgeon told us "I don't want to do it" for 20 minutes. After hearing the explanation, my son became anxious and distrustful of his appetite and could not go to school. We appealed to the hospital to change the hospital undergoing surgery. What the hospital offered was that I would like you to think about it after receiving an explanation of the surgery again. The new cardiovascular surgeon said, "I think it's better to cut the middle of the chest rather than the left thoracotomy, rather than a difficult operation. Don't worry, I've done the same surgery many times and have experience." Said. So why did you say that you can't do it without a left thoracotomy? There is still no explanation for it. We cannot choose a doctor. But you have to leave your life to the doctor. If you have a relationship of trust when something happens and your life ends during surgery, you won't blame or regret your doctor. We choose doctors and hospitals that can build relationships of trust even if we change hospitals. I don't want to regret it anymore.

旧ホルト・オーラム症候群の会 "ハート&ハンド

最新のHPは https://hos-heart-and-hand.org/ ホルト・オーラム症候群の会を始めた頃の事が中心です ホルト・オーラム症候群の会は この病気の患者様やご家族の交流会の場であり 情報交換や勉強会を主としています *個人情報に関しては以下の通り 約束を厳守できない方には法的手段をとります この会で知り得た情報の公言・拡散等の禁止 尊厳の尊重 暴言等の禁止

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